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Araya Abrha Medhanyie
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Journal Articles
Getu Tadele Taye, Samson Yohannes Amare, Tesfit Gebremeskel G., Araya Abrha Medhanyie, Wondimu Ayele ...
Publisher: Journals Gateway
Data Intelligence (2022) 4 (4): 813–826.
Published: 01 October 2022
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View articletitled, FAIR Equivalency with Regulatory Framework for Digital Health in Ethiopia
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for article titled, FAIR Equivalency with Regulatory Framework for Digital Health in Ethiopia
This paper investigates whether or not there is a policy window for making health data ‘Findable’, ‘Accessible’ (under well-defined conditions), ‘Interoperable’ and ‘Reusable’ (FAIR) in Ethiopia. The question is answered by studying the alignment of policies for health data in Ethiopia with the FAIR Guidelines or their ‘FAIR Equivalency’. Policy documents relating to the digitalisation of health systems in Ethiopia were examined to determine their FAIR Equivalency. Although the documents are fragmented and have no overarching governing framework, it was found that they aim to make the disparate health data systems in Ethiopia interoperable and boost the discoverability and (re)usability of data for research and better decision making. Hence, the FAIR Guidelines appear to be aligned with the regulatory frameworks for ICT and digital health in Ethiopia and, under the right conditions, a policy window could open for their adoption and implementation.
Journal Articles
Mirjam Van Reisen, Francisca Onaolapo Oladipo, Mouhamed Mpezamihigo, Ruduan Plug, Mariam Basajja ...
Publisher: Journals Gateway
Data Intelligence (2022) 4 (4): 673–697.
Published: 01 October 2022
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View articletitled, Incomplete COVID-19 Data: The Curation of Medical Health Data by the Virus Outbreak Data Network-Africa
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for article titled, Incomplete COVID-19 Data: The Curation of Medical Health Data by the Virus Outbreak Data Network-Africa
The incompleteness of patient health data is a threat to the management of COVID-19 in Africa and globally. This has become particularly clear with the recent emergence of new variants of concern. The Virus Outbreak Data Network (VODAN)-Africa has studied the curation of patient health data in selected African countries and identified that health information flows often do not involve the use of health data at the point of care, which renders data production largely meaningless to those producing it. This modus operandi leads to disfranchisement over the control of health data, which is extracted to be processed elsewhere. In response to this problem, VODAN-Africa studied whether or not a design that makes local ownership and repositing of data central to the data curation process, would have a greater chance of being adopted. The design team based their work on the legal requirements of the European Union's General Data Protection Regulation (GDPR); the FAIR Guidelines on curating data as Findable, Accessible (under well-defined conditions), Interoperable and Reusable (FAIR); and national regulations applying in the context where the data is produced. The study concluded that the visiting of data curated as machine actionable and reposited in the locale where the data is produced and renders services has great potential for access to a wider variety of data. A condition of such innovation is that the innovation team is intradisciplinary, involving stakeholders and experts from all of the places where the innovation is designed, and employs a methodology of co-creation and capacity-building.